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Pensar Enfermagem / v.28 n.sup / October 2024

DOI: 10.71861/pensarenf.v28iSup.385

Abstract

Introduction

Cystic Fibrosis (CF) is a chronic, progressive genetic disease that primarily affects the

respiratory system (1). Treatment is complex, involving multiple daily care routines and

regular rehabilitation interventions (2). However, adherence is often unsatisfactory (2). Recent

technological advances have increased accessibility to care and adherence to treatment,

although studies on telerehabilitation remain limited and scattered (1).

Objective

To identify the rehabilitation interventions mediated by information and communication

technologies (ICT) and understand how they are developed in providing care to children

and adolescents with CF.

Methods

The review was guided by the steps recommended by the Joanna Briggs Institute (JBI),

using the PCC mnemonic (Population – children and adolescents; Concept – ICT-mediated

rehabilitation interventions; Context – health care practice environments). The search was

conducted in MEDLINE, CINAHL, Scopus, JBI, Web of Science and grey literature. The

process of identification and selection of studies was described through a flowchart,

according to the PRISMA guidelines.

Results

Of the 425 studies identified, 5 were included: 2 clinical trials, 1 quasi-experimental study,

1 feasibility study, and 1 cross-sectional study. In 3 of the included studies, telerehabilitation

programs consisted of home exercise training(1-3), and in 2 of them, the promotion of

therapeutic regimen and symptomatic control through teleconsultations or

telemonitoring(2,3). The ICT used were web platforms, video game consoles, and telephone.

The intervention was monitored via teleconsultation (telephone or web platform) or heart

rate monitor(3).

Conclusion

Telerehabilitation interventions in children and adolescents with CF focus on physical

exercise, therapeutic regimen management, and symptom control through web platforms,

video game consoles, and telephone. The results provide suggestions for clinical practice,

identifying components for structuring telerehabilitation interventions and highlighting

gaps in intervention and research in this area.

Keywords

Cystic Fibrosis; Child; Adolescent; Telerehabilitation; Review.

Bibliography

1. Holmes CJ, Racette SB, Symonds L, Arbeláez AM, Cao C, Granados A. Feasibility and

Efficacy of Telehealth-Based Resistance Exercise Training in Adolescents with Cystic

Fibrosis and Glucose Intolerance. Int J Environ Res Public Health [Internet]. 2022 [cited

2024/09/07]; 19(6):3297. Available in: http://dx.doi.org/10.3390/ijerph19063297

2. Del Corral T, Cebrià I Iranzo MÀ, López-de-Uralde-Villanueva I, Martínez-Alejos R,

Blanco I, Vilaró J. Effectiveness of a Home-Based Active Video Game Programme in

Young Cystic Fibrosis Patients. Respiration[Internet]. 2018 [cited 2024/09/07]; 95(2):87-97.

Available in: https://doi.org/10.1159/000481264

Telerehabilitation in Children and Adolescents with

Cystic Fibrosis - Scoping Review

Mara Ferreira 1,2

orcid.org/0000-0002-3536-407X

Ezequiel Pessoa 2,3

orcid.org/0000-0002-0756-2693

Cristina Lavareda Baixinho2,3

orcid.org/0000-0001-7417-1732

1Unidade Local de Saúde Santa Maria: Centro

Hospitalar Universitário Lisboa Norte, Lisboa,

Portugal.

2Nursing Research, Innovation and Development

Centre of Lisbon (CIDNUR), Lisboa, Portugal.

3 Nursing School of Lisbon, Lisboa, Portugal.

Corresponding author:

Mara Ferreira

E-mail: maraferreira@campus.esel.pt