Vol. 19 No. 2 (2015): Journal of Nursing Pensar Enfermagem
Original Articles

Impact of the birth of a child with Trisomy 21: perspective of portuguese elderly couples

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  • Maria Natália Macedo Rodrigues,
  • Alcione Leite da Silva
Maria Natália Macedo Rodrigues
Enfermeira, RN
Alcione Leite da Silva
Professora, Universidade de Aveiro, PhD, MSc, RN
DOI: https://doi.org/10.56732/pensarenf.v19i2.108

Published 2015-12-30

Keywords

  • trisomy 21,
  • diagnosis disclosure,
  • reaction to the diagnosis,
  • qualitative research

How to Cite

Macedo Rodrigues, M. N., & Leite da Silva, A. (2015). Impact of the birth of a child with Trisomy 21: perspective of portuguese elderly couples. Pensar Enfermagem, 19(2), 54–67. https://doi.org/10.56732/pensarenf.v19i2.108
Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

Abstract

The present study aimed to explore previous experiences of Portuguese elderly couples in receiving the diagnosis of their children with Trisomy 21. It was developed using the oral history method, with the participation of fourteen couples. Data was collected through semi-structured interviews and analyzed based on content analysis. The results revealed that the diagnosis disclosure was a complex and difficult experience for couples to live through, accompanied by insufficient information about the syndrome, the childcare and the support network. The reactions of parents, families and friends to the diagnosis were, initially, hard-hitting, but ultimately they accepted and supported the children, without discrimination.

PDF (Português (Portugal))

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